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Name
Ashley Greiner
Title
Congestive heart failure
Bio
Ashley Greiner resides in Central New York and is a disability and workers’ compensation attorney, turned patient advocate, as a result of being diagnosed with congestive heart failure (CHF), left bundle branch block, mitral valve prolapse regurgitation and supraventricular tachycardia four years ago, at the age of 35. She was also diagnosed with Hashimoto’s Thyroiditis, an autoimmune disease, six years earlier in 2009.
After her diagnosis, Ashley started to research her heart failure and noticed the lack of positive resources available to help guide her through the diagnosis, treatment and management of CHF. At 35, she was significantly younger than the majority of CHF patients, had her whole life ahead of her and she was trying to adapt to her “new normal.” She was looking for a supportive outlet to inform her about her disease, the necessary lifestyle changes she would have to make moving forward, and her medical options.
In December 2018, Ashley created the CHF Patient and Caregiver Support Group to give congestive heart failure patients and their caregivers information, education and inspiration. At over 2,400 worldwide members and growing daily, this Facebook group is designed to make everyone feel welcome, have a space to share achievements and setbacks, as well as a place to ask questions, vent, share resources and find solace knowing they are not alone in fighting CHF. The majority of members are patients ranging from 20 to 101 years old, showing how extensive the reach of this disease is—yet many people don’t know what congestive heart failure is or how serious the health implications of this disease are. Ashley and her group members regularly team up with universities, research groups, health technology companies and others to help further improve the quality of life for heart failure patients.
Ashley has two implanted cardiac devices-a biventricular ICD/CRT (pacemaker/defibrillator) and the CardioMEMS HF System (a pulmonary arterial pressure monitor) and is a Volunteer Ambassador for Abbott.
After her diagnosis, Ashley started to research her heart failure and noticed the lack of positive resources available to help guide her through the diagnosis, treatment and management of CHF. At 35, she was significantly younger than the majority of CHF patients, had her whole life ahead of her and she was trying to adapt to her “new normal.” She was looking for a supportive outlet to inform her about her disease, the necessary lifestyle changes she would have to make moving forward, and her medical options.
In December 2018, Ashley created the CHF Patient and Caregiver Support Group to give congestive heart failure patients and their caregivers information, education and inspiration. At over 2,400 worldwide members and growing daily, this Facebook group is designed to make everyone feel welcome, have a space to share achievements and setbacks, as well as a place to ask questions, vent, share resources and find solace knowing they are not alone in fighting CHF. The majority of members are patients ranging from 20 to 101 years old, showing how extensive the reach of this disease is—yet many people don’t know what congestive heart failure is or how serious the health implications of this disease are. Ashley and her group members regularly team up with universities, research groups, health technology companies and others to help further improve the quality of life for heart failure patients.
Ashley has two implanted cardiac devices-a biventricular ICD/CRT (pacemaker/defibrillator) and the CardioMEMS HF System (a pulmonary arterial pressure monitor) and is a Volunteer Ambassador for Abbott.
