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Name
Tanya Coliln-Histed
Bio
Tanya Collin-Histed became involved in the Gaucher world in 1996 when her daughter Maddie was diagnosed with Type 3 Gaucher disease. A year later she became a Trustee for the UK Gauchers Association and started to support patients and their families with Type II and III Gaucher Disease through family conferences, information booklets and proving friendship and emotional support.
In June 2020, Tanya became a Director of a new company called International GARDIAN Ltd (IGL). The IGL is a company wholly owned by the IGA that will own and govern the new Global patient nGD registry. The Gaucher Registry for Development, Innovation, and Analysis of Neuronopathic disease (GARDIAN) will study patients with GD2 and GD3 worldwide by collecting longitudinal data on self-reported symptom burden, functional status and health-related quality of life (HRQOL) and well-being in a systematic and standardized manner.
Outside of work Tanya’s time is spent preparing for her next triathlon, long swim or SwimRun event, so swimming, running and cycling is where you will find her. She also enjoys a good book.
In June 2020, Tanya became a Director of a new company called International GARDIAN Ltd (IGL). The IGL is a company wholly owned by the IGA that will own and govern the new Global patient nGD registry. The Gaucher Registry for Development, Innovation, and Analysis of Neuronopathic disease (GARDIAN) will study patients with GD2 and GD3 worldwide by collecting longitudinal data on self-reported symptom burden, functional status and health-related quality of life (HRQOL) and well-being in a systematic and standardized manner.
Outside of work Tanya’s time is spent preparing for her next triathlon, long swim or SwimRun event, so swimming, running and cycling is where you will find her. She also enjoys a good book.
