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Name
Christine Mutena
Bio
Christine Mutena is an immensely passionate advocate for rare diseases and special needs in Kenya and globally. These causes are deeply personal to her being a mother of two children, both of whom have non-related rare genetic conditions.
Christine is the co-founder of Rare Disorders Kenya, a patient-led organisation that seeks to amplify the unmet needs of the rare diseases community that creates awareness on rare diseases in Kenya, more so through the Rare Disease Day campaign, and to policy makers.
She is also on the Patient Group Engagement Committee of Findacure (2021-2023 term). Findacure is a UK charity organisation that is bringing the rare disease community together to drive research and develop treatments. They are here to transform the world’s understanding of rare diseases and the devastating impact they have on people’s lives.
Christine is also the founder of Step by Stones association, an organization that leverages social media platforms to offer support to its community of special needs parents, caregivers and psycho-social support specialists.
Christine is the co-founder of Rare Disorders Kenya, a patient-led organisation that seeks to amplify the unmet needs of the rare diseases community that creates awareness on rare diseases in Kenya, more so through the Rare Disease Day campaign, and to policy makers.
She is also on the Patient Group Engagement Committee of Findacure (2021-2023 term). Findacure is a UK charity organisation that is bringing the rare disease community together to drive research and develop treatments. They are here to transform the world’s understanding of rare diseases and the devastating impact they have on people’s lives.
Christine is also the founder of Step by Stones association, an organization that leverages social media platforms to offer support to its community of special needs parents, caregivers and psycho-social support specialists.
