Samuel Wiafe

Samuel Wiafe is a Clinical Psychologist in Ghana. He is an alumni of the University of Ghana and has developed interest in advocating and supporting persons living with rare, genetic and congenital diseases in Africa. Samuel has founded Rare Disease Ghana Initiative, a nonprofit organization which is made up of a network of volunteers, clinicians, researchers, patients and caregivers to seek wide endorsement and to advocate for implementation of a plan to support research, education, service development, promote awareness of rare diseases and support for individuals affected by rare diseases in Ghana. Through the leadership of Samuel who also serves as the Executive Director, Rare Disease Ghana Initiative has spearheaded the celebration of Rare Disease Day twice in Ghana, developed a program to assist in access to diagnosis for rare diseases, developed a program to improve access to treatments for rare diseases, established a support group for rare diseases in Ghana, established a professional network (reference network) for rare diseases in Ghana, developed a patient care coordination program, developed a caregiver empowerment program, developed a training program and currently working on developing a registry for rare diseases in Ghana. It is the hope of Samuel Wiafe that Rare Disease Ghana Initiative will develop as a resource center to serve the rare disease community in West Africa and sub-Saharan African region.