If you think of neuromuscular disorders, you will probably think of children with Duchenne muscular dystrophy. A lot these people now live into adulthood, meaning that they are turning to adult hospices for their services. This lecture will examine what we know currently, what we need to find out and what you and your unit could do to be involved in this expanding area of work.
The handout for this session is available by clicking the handout icon on the bottom right-hand corner of the video player
Professor Derek Willis
Medical Director, Severn Hospice & Visiting Professor, University of Chester
Derek is a fully qualified GP who has worked in palliative medicine in the Midlands, the North East and New Zealand. He teaches ethics at three universities and is a member of the UNESCO Department of Bioethics at Edgehill University. He is currently Treasurer of the Association of Palliative Medicine and is an associate editor of the BMJ Supportive & Palliative Care. Derek has developed an interest in palliative medicine for adults who have survived childhood diagnoses and those diseases presenting in adult hood. He has presented to the House of Lords with regards to palliative medicine provision for patients in this group and is also part of the North Star group setting standards for those adults with Duchenne muscular dystrophy.