Latest
First Gene Therapy for Children with Metachromatic Leukodystrophy
March 24, 2024
News
Lenmeldy (atidarsagene autotemcel) has received approval from the U.S. Food and Drug Administration. This marks a significant milestone as it is the first gene therapy to be approved by the FDA for the treatment of children with pre-symptomatic late…
Support the children and their families impacted by the Earthquake in Türkiye & Syria
February 08, 2023
News
At least two powerful earthquakes struck in southern Turkey and northern Syria in the early hours of Feb. 6. At least 6,200 people have been killed with thousands more injured. The real death toll and impact of the disaster, however, remains to be seen as…
Michael V Johnston [1946 - 2022]
August 07, 2022
News
I am deeply saddened to learn that Michael V Johnston MD. Professor Emeritus of Pediatrics and Neurology at the Johns Hopkins University School of Medicine and former Chief Medical Officer and Executive Vice President at the Kennedy Krieger Institute,…
Bids are open for the 2026 ICNC
March 06, 2022
News
The International Child Neurology Association (ICNA) invites "letter of intent" from interested parties to enter the bidding to host the International Child Neurology Congress in 2026. Bidders are invited to send a “letter of intent” (not more than a short…
Alcy Torres Catefort (Sr) [1938 - 2022]
February 06, 2022
News
It is with great sadness we share that Alcy Torres Catefort Sr, MD, father of our esteemed colleague Dr. R. Alcy Torres, a global health leader himself, died January 9, 2022, at home. He was 84. Born in Ecuador, Dr. Torres received his MD from Universidad…
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